The Global FKRP Registry is an international registry that collects genetic and clinical data about individuals with conditions caused by changes in the FKRP gene (Fukutin Related Protein). This includes Limb Girdle Muscular Dystrophy type 2I/R9 (LGMD2I/R9, also known as Muscular Dystrophy-Dystroglycanopathy (Limb-Girdle), Type C, 5) (MDDGC5)), and the rarer conditions Congenital Muscular Dystrophy (MDC1C), Muscle Eye Brain Disease (MEB) and Walker-Warburg Syndrome (WWS).