Patient Support Organisations
CureLGMD2i (formerly known as the Samantha J. Brazzo Foundation) has joined forces with the LGMD2I Research Fund, Cure CMD and the Stevenson Family Fund to support research specifically towards a treatment or cure for LGMDR9/2I.
MDUK is the leading UK charity focusing on muscular dystrophy and other related conditions. They are dedicated to beating muscular dystrophy and other related conditions by finding treatments and cures and to improving the lives of everyone affected by them.
Muscular Dystrophy Association (MDA)
MDA is a non-profit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
Cure CMD is a patient organisation that is dedicated to bringing research, treatments and hopefully a cure for congenital muscular dystrophies.
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing over 600 disease patients organisations in 58 countries. They seek to improve the quality of life of people living with rare disease in Europe through advocacy, support for research, networking and raising awareness.
National Organisation for Rare Disorders (NORD)
NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
The page has been set up by Lacey Woods as a way of forming a community and sharing experiences with others affected by LGMD2I. You will need to have an active account on Facebook to login.