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  • Why should I register?
  • What information is collected?
  • How do I register?
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  • JWMDRC Registries
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  • Home
  • What is a patient registry?
  • Who should register?
  • Why should I register?
  • What information is collected?
  • How do I register?
  • Registration process
  • Data protection
  • Example questionnaire
  • Frequently asked questions
  • General information
  • Frequently asked questions
  • Information for researchers
  • Patients’ stories
  • Current research
  • Patient Support Organisations
  • Clinical trials
  • Research
  • Care information
  • Contact us
  • The Steering Committee
  • The Registry team
  • Newsletters
  • Leaflets
  • Posters
  • Publications
  • Projects supported
  • Register now
  • Login
  • JWMDRC Registries
  • Legal notice
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Leaflets Graphic Animation

Information leaflets have been produced to help explain what the Global FKRP Registry is about and how to register. When more languages become available they will be added here.

  • Catalan

  • English

  • Dutch

  • French

  • German

  • Italian

  • Norwegian

  • Portuguese

  • Spanish

We also have a postcard available in English: Global FKRP Registry Postcard

If you are a doctor and would like paper copies of the leaflets sent to you then please contact the Registry team.